Symposium Speaker: Shirley Lacks & Veronica Robinson representing the Lacks Family

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The Lacks Family are direct descendants from Henrietta Lacks, a cervical cancer patient whose biospecimens were used without her consent to create immortal cell lines now known as HeLa cells.  The impoverished Lacks Family, with no knowledge of the cell lines or their use in biomedical research, had no opportunity to understand or benefit from the potential commercial applications of the biospecimens.  Since the publication of Rebecca Skloot’s The Immortal Life of Henrietta Lacks, the Lacks Family has spoken to audiences about their family’s experience both as research participants and as participants informing and directing research and policy.

We are delighted that Ms. Veronica Robinson and Ms. Shirley Lacks will be speaking with us about the legacy of their family's experience in biomedical research and its potential impact on participation and ethics in this modern era of precision medicine.

Veronica Spencer Robinson (far right) is Henrietta Lacks’ great granddaughter.  Ms. Robinson is a Lacks Family representative on a panel for the National Institutes of Health (NIH) responsible for reviewing applications for the use of the HeLa cells in research.

Spencer_VeronicaLacks_Shirely

Shirley Lacks is Henrietta's daughter-in-law and was close friends with Henrietta's daughter Deborah.

The invitation of the Lacks family was made possible, in part, by a grant from the Nord Family Foundation through CWRU's UCITE Nord Grant, the CWRU Cell and Molecular Biology Training Program (T32 GM008056-34), and the CWRU Department of Bioethics.

PUBLICATIONS ON THE LACKS FAMILY

Beskow LM. Lessons from HeLa Cells: The Ethics and Policy of Biospecimens. Ann Rev Genomics Hum Genet 2016. PMID:26979405

Tweets by the Lacks Family

Henrietta Lacks' DNA has led to medical advances for polio, cancer, HIV & COVID vaccines — but it was taken without consent. Her great-granddaughter Victoria Baptiste (@LacksFamily) tells @namshine about her family's fight for justice. At 8/11pm | Producer: @sandragionas #HELA100 Retweeted by LacksFamily

We owe it to Henrietta Lacks who died of #CervicalCancer to make lifesaving tools available and affordable for women everywhere. @DrTedros @LacksFamily #GlowTeal Retweeted by LacksFamily

As we #GlowTeal we take action to illuminate the cause! Today we were proud to announce The @LacksFamily will be hosting a 2022 #CervicalCancer Elimination Listening Summit in Baltimore, MD. Follow us to be updated! #TealTakeover Retweeted by LacksFamily

Thank you First Lady Jeannette Kagame @FirstLadyRwanda we will continue to stand in solidarity with communities around the world, to demand health equity & social justice, & advocate that everyone have access to the lifesaving breakthroughs created from our Hennie's #HeLacells. twitter.com/FirstLadyRwand… Retweeted by LacksFamily

Thank you @DrTedros for the Director General's award posthumous to Henrietta Lacks @WHO Retweeted by LacksFamily

test Twitter Media - RT @CELLebrateHeLa: Thank you @DrTedros for the Director General's award posthumous to Henrietta Lacks @WHO https://t.co/lKTKYEiPNS

First Lady Jeannette Kagame: We owe the family of Henrietta Lacks - @LacksFamily, the faith that the research, that we are indebted to her for, will lead us to a world, with zero cervical cancer fatality. Read the full speech here: bit.ly/3ozUYvC Retweeted by LacksFamily

Thank you everyone for joining us today to commemorate #HELAAT70 @BristolUni. Look out for the full list of events and the link to watch the #HELA100 Keynote Conversation Retweeted by LacksFamily

#SayHerName #HenriettaLacks as we push forward by advancing #HELA100, to educate future generations on the impact of her #HeLacells while promoting equity and social justice. twitter.com/CELLebrateHeLa…

Henrietta Lacks' two surviving sons, the eldest, Lawrence Lacks (left), and his brother, David "Sonny" Lacks (right) are honoring their mother's 101st birthday today! Join the @LacksFamily and #HELA100 to ensure the world knows her name and contributions. #HeLaCells #SayHerName Retweeted by LacksFamily

#SayHerName Henrietta Lacks' eldest son, Lawrence Lacks and the rest of the Lacks Family want the world to recognize Henrietta Lacks' contribution! @CELLebrateHeLa #HELA100 #HenriettaLacks twitter.com/CELLebrateHeLa…

test Twitter Media - #SayHerName Henrietta Lacks' eldest son, Lawrence Lacks and the rest of the Lacks Family want the world to recognize Henrietta Lacks' contribution! @CELLebrateHeLa #HELA100 #HenriettaLacks https://t.co/GOUd9smM1m https://t.co/oGhmt4C6Oz
test Twitter Media - #SayHerName Henrietta Lacks' eldest son, Lawrence Lacks and the rest of the Lacks Family want the world to recognize Henrietta Lacks' contribution! @CELLebrateHeLa #HELA100 #HenriettaLacks https://t.co/GOUd9smM1m https://t.co/oGhmt4C6Oz
test Twitter Media - #SayHerName Henrietta Lacks' eldest son, Lawrence Lacks and the rest of the Lacks Family want the world to recognize Henrietta Lacks' contribution! @CELLebrateHeLa #HELA100 #HenriettaLacks https://t.co/GOUd9smM1m https://t.co/oGhmt4C6Oz
test Twitter Media - #SayHerName Henrietta Lacks' eldest son, Lawrence Lacks and the rest of the Lacks Family want the world to recognize Henrietta Lacks' contribution! @CELLebrateHeLa #HELA100 #HenriettaLacks https://t.co/GOUd9smM1m https://t.co/oGhmt4C6Oz

Say Her Name, Henrietta Lacks! This Sunday, August 1, 2021, marks Henrietta Lacks' 101st birthday. Today, our family united in demanding the end of the inequities in access to the breakthroughs that her HeLa cells have created. @CELLebrateHeLa #HELA100 #SayHerName

We look forward to you joining us for the 2021 Virtual Colloquium on October 4, 2021 to CELLebrate our beloved Hennie. Her Legacy Lives On tinyurl.com/2021Colloquium #HeLaCells #HELA100 twitter.com/CELLebrateHeLa…

The 2021 Virtual Colloquium has been rescheduled and registration is now open at tinyurl.com/2021Colloquium for the #HELA100 Colloquium on October 4, 2021. Learn more about the importance of October 4th as The @LacksFamily CELLebrates #HenriettaLacks #HELAat70 #HeLaCells Retweeted by LacksFamily

No family should lose a loved one due to #CervicalCancer! We continue to stand in solidarity with women around the world that are carrying the burden of cervical cancer mortality in middle and low-income countries as well as women of color disproportionally affected in the US. twitter.com/CELLebrateHeLa…

Tune in now for this month's #HELA100 Conversation presented by @uwsmph @AllofUsResearch @V1007 Community Town Hall on Science, Research & Communities of Color featuring our very own Victoria Baptiste, Henrietta Lacks' great-granddaughter. fb.watch/5A1wafJz0B/ @FacebookWatch

Have you voted yet? ⏰Take 30 seconds to help honor the Mother of Modern Medicine! There's still time to vote for the city of #Roanoake to rename Lee Plaza, to #HenriettaLacks Plaza! ✊🏾❤️💯💁🏾‍♀️ twitter.com/CELLebrateHeLa…

#NationalNursesDay2021❤️the nurses on the front lines during the COVID-19 pandemic - including our very own family nurse, Victoria. Click here to hear how Victoria honors her great-grandmother #HenriettaLacks by advocating for her patients tinyurl.com/reeltalkvictor… #HELAUNITE

test Twitter Media - #NationalNursesDay2021❤️the nurses on the front lines during the COVID-19 pandemic - including our very own family nurse, Victoria. Click here to hear how Victoria honors her great-grandmother #HenriettaLacks by advocating for her patients https://t.co/Q0NkT9h04q #HELAUNITE https://t.co/MuJA08rta7

We are excited to share opening remarks from The @LacksFamily at the @AllofUsResearch Spring Meeting #EngageAllofUs2021 #JoinAllofUs Come by Booth 3 to speak to The Lacks Family Retweeted by LacksFamily

We are excited for you to join us in 20 minutes at 1 PM ET for our #MinorityHealthMonth Centennial Conversation @CELLebrateHeLa You can still register at hela100.org/events

test Twitter Media - We are excited for you to join us in 20 minutes at 1 PM ET for our #MinorityHealthMonth Centennial Conversation @CELLebrateHeLa  You can still register at https://t.co/6BCFqjpokp https://t.co/wPK0LD5Pll

The Lacks Family Website