Symposium Speaker: Aaron Goldenberg, PhD, MPH

Dr. Aaron Goldenberg leads the Ethics Core for the Institute for Computational Biology and is an Associate Professor in the Department of Bioethics at CWRU School of Medicine. He is also the Director of Research for the Department and the Associate Director of the Center for Genetic Research Ethics and Law, a NIH Center of Excellence in Ethical, Legal, and Social Implications Research for the National Human Genome Research Institute. He earned his PhD in Bioethics at CWRU. Since joining the faculty at CWRU, Dr. Goldenberg’s work has focused on the ethical, legal, and social implications of genetics and genomics in clinical and public health settings. His research program has been grounded by a number of major project areas, including: 1) ethical implications of expanding newborn screening programs; 2) storage and use of perinatal and pediatric biological specimens for future research; 3) implications of genetics and gene-environment interactions for racial/ethnic minorities and other communities experiencing health disparities.  Dr. Goldenberg is currently the Co-PI of a project funded by the Health Resources and Services Administration (HRSA) to explore the ethical and programmatic challenges of integrating genomic technology into Newborn Screening Programs, and the Principal Investigator on a project funded by the NIH National Human Genome Research Institute to examine parental attitudes regarding the research use of biospecimens collected from newborns. Dr. Goldenberg is also leading a project to assess how genomic advances may impact medically-underserved communities, and how clinicians and public health agencies could better assess biological and social determinants to account for gene-environment interactions. In addition to these scholarly initiatives, Dr. Goldenberg is Director for Ethics, Policy and Practice for the National Newborn Screening Clearinghouse, also known as Baby’s First Test. He is a member of the Ethics and Legal Workgroup for the Newborn Screening Translational Research Network and the Legal and Legislative Workgroup for the American Public Health Laboratory Association. He is a member of the Pediatric Task Team for the Global Alliance for Genomics and Health.  

Recent Publications

  1. Halley, MC, Smith, HS, Ashley, EA, Goldenberg, AJ, Tabor, HK. A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States. Nat Genet 2022; 54 (3): 219-222. PubMed PMID:35256804 PubMed Central PMC9016354.
  2. Goldenberg, AJ, Ponsaran, R, Gaviglio, A, Simancek, D, Tarini, BA. Genomics and Newborn Screening: Perspectives of Public Health Programs. Int J Neonatal Screen 2022; 8 (1): . PubMed PMID:35225933 PubMed Central PMC8883997.
  3. Page, A, Goldenberg, A, Matthews, AL. Lived experiences of individuals with cystic fibrosis on CFTR-modulators. BMC Pulm Med 2022; 22 (1): 42. PubMed PMID:35062937 PubMed Central PMC8781590.
  4. Brothers, KB, Goldenberg, AJ, Cadigan, RJ. "If It's Ethical During a Pandemic…": Lessons from COVID-19 for Post-Pandemic Biobanking. Am J Bioeth 2021; 21 (12): 34-36. PubMed PMID:34806961 .
  5. Wasserstein, MP, Orsini, JJ, Goldenberg, A, Caggana, M, Levy, PA, Breilyn, M, Gelb, MH. The future of newborn screening for lysosomal disorders. Neurosci Lett 2021; 760 : 136080. PubMed PMID:34166724 .
  6. Jayaraman, S, Koenig, S, Fiddler, M, Simi, E, Goldenberg, A, Magasi, S, Wicklund, C. Prenatal genetic counselors' perceptions of the impact of abortion legislation on counseling and access in the United States. J Genet Couns 2021; 30 (6): 1671-1682. PubMed PMID:34096144 .
  7. Tarling, TE, Goldenberg, A, Ellis, A, Chow, V, Velenosi, A, Vercauteren, SM. Ethical Challenges for Pediatric Biobanks. Biopreserv Biobank 2021; 19 (2): 101-105. PubMed PMID:33847522 .
  8. Miller, BC, Goldenberg, AJ, Bonhomme, NF. Digital peer-to-peer information seeking and sharing: Opportunities for education and collaboration in newborn screening. Am J Med Genet C Semin Med Genet 2021; 187 (1): 64-69. PubMed PMID:33502079 .
  9. Halley, MC, Stanley, T, Maturi, J, Goldenberg, AJ, Bernstein, JA, Wheeler, MT, Tabor, HK. "It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic. Genet Med 2021; 23 (5): 837-844. PubMed PMID:33420343 PubMed Central PMC7792915.
  10. Lynch, JA, Goldenberg, AJ, Garrison, NA, Brothers, KB. Analogies in Genomics Policymaking: Debates and Drawbacks. Am J Hum Genet 2020; 107 (5): 797-801. PubMed PMID:33157006 PubMed Central PMC7674995.
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The Goldenberg Lab Website

Curriculum vitae