Symposium Speaker: Aaron Goldenberg, PhD, MPH

Dr. Aaron Goldenberg leads the Ethics Core for the Institute for Computational Biology and is an Associate Professor in the Department of Bioethics at CWRU School of Medicine. He is also the Director of Research for the Department and the Associate Director of the Center for Genetic Research Ethics and Law, a NIH Center of Excellence in Ethical, Legal, and Social Implications Research for the National Human Genome Research Institute. He earned his PhD in Bioethics at CWRU. Since joining the faculty at CWRU, Dr. Goldenberg’s work has focused on the ethical, legal, and social implications of genetics and genomics in clinical and public health settings. His research program has been grounded by a number of major project areas, including: 1) ethical implications of expanding newborn screening programs; 2) storage and use of perinatal and pediatric biological specimens for future research; 3) implications of genetics and gene-environment interactions for racial/ethnic minorities and other communities experiencing health disparities.  Dr. Goldenberg is currently the Co-PI of a project funded by the Health Resources and Services Administration (HRSA) to explore the ethical and programmatic challenges of integrating genomic technology into Newborn Screening Programs, and the Principal Investigator on a project funded by the NIH National Human Genome Research Institute to examine parental attitudes regarding the research use of biospecimens collected from newborns. Dr. Goldenberg is also leading a project to assess how genomic advances may impact medically-underserved communities, and how clinicians and public health agencies could better assess biological and social determinants to account for gene-environment interactions. In addition to these scholarly initiatives, Dr. Goldenberg is Director for Ethics, Policy and Practice for the National Newborn Screening Clearinghouse, also known as Baby’s First Test. He is a member of the Ethics and Legal Workgroup for the Newborn Screening Translational Research Network and the Legal and Legislative Workgroup for the American Public Health Laboratory Association. He is a member of the Pediatric Task Team for the Global Alliance for Genomics and Health.  

Recent Publications

  1. Charnysh, E, Pal, S, Reader, JM, Uhlmann, WR, McCain, S, Sanghavi, K, Blasco, D, Brandt, R, Feero, WG, Ferber, R et al.. Health care utilization and behavior changes after workplace genetic testing at a large US health care system. Genet Med 2024; 26 (8): 101160. PubMed PMID:38733246 .
  2. Ferryman, K, Goldenberg, AJ, Sabatello, M. Moving to Equity in the All of Us Research Program. Am J Bioeth 2024; 24 (3): 115-117. PubMed PMID:38394025 .
  3. Brothers, KB, Cooper, GM, McNamara, KC, Lemke, AA, Timmons, J, Rich, CA, Cadigan, RJ, Ponsaran, RS, Goldenberg, AJ. Moving to the Middle Ground: Redefining Genomic Utility to Expand Understanding of Familial Benefit. Ethics Hum Res 2024; 46 (1): 43-48. PubMed PMID:38240400 PubMed Central PMC11173350.
  4. Kelly, NR, Orsini, JJ, Goldenberg, AJ, Mulrooney, NS, Boychuk, NA, Clarke, MJ, Paleologos, K, Martin, MM, McNeight, H, Caggana, M et al.. ScreenPlus: A comprehensive, multi-disorder newborn screening program. Mol Genet Metab Rep 2024; 38 : 101037. PubMed PMID:38173711 PubMed Central PMC10761901.
  5. Goldenberg, AJ. Integrating Genomics Into Pediatric Health Care: The Long Road Ahead. Pediatrics 2023; 152 (2): . PubMed PMID:37470117 .
  6. Halley, MC, Halverson, CME, Tabor, HK, Goldenberg, AJ. Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care. Am J Bioeth 2023; 23 (7): 17-26. PubMed PMID:37204146 PubMed Central PMC10321139.
  7. Lekstrom-Himes, J, Brooks, PJ, Koeberl, DD, Brower, A, Goldenberg, A, Green, RC, Morris, JA, Orsini, JJ, Yu, TW, Augustine, EF et al.. Moving away from one disease at a time: Screening, trial design, and regulatory implications of novel platform technologies. Am J Med Genet C Semin Med Genet 2023; 193 (1): 30-43. PubMed PMID:36738469 PubMed Central PMC10038900.
  8. Gaviglio, AM, Skinner, MW, Lou, LJ, Finkel, RS, Augustine, EF, Goldenberg, AJ. Gene-targeted therapies: Towards equitable development, diagnosis, and access. Am J Med Genet C Semin Med Genet 2023; 193 (1): 56-63. PubMed PMID:36688577 .
  9. Vockley, J, Defay, T, Goldenberg, AJ, Gaviglio, AM. Scaling genetic resources: New paradigms for diagnosis and treatment of rare genetic disease. Am J Med Genet C Semin Med Genet 2023; 193 (1): 77-86. PubMed PMID:36448938 PubMed Central PMC10038858.
  10. Hubbel, A, Hogan, E, Matthews, A, Goldenberg, A. North American genetic counselors' approach to collecting and using ancestry in clinical practice. J Genet Couns 2023; 32 (2): 462-474. PubMed PMID:36445952 .
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The Goldenberg Lab Website

Curriculum vitae