Symposium Speaker: Nanibaa’ Garrison, PhD

Dr. Garrison is Assistant Professor in the Treuman Katz Center for Pediatric Bioethics at Seattle Children’s Research Institute and Department of Pediatrics at the University of Washington.  She is also faculty for the Summer internship for INdigenous peoples in Genomics (SING) Workshop, a competitive yearly one-week workshop covering the uses, misuses, and limitations of genomics as a tool for indigenous peoples' communities.  Dr. Garrison's research interests include ethical issues in genetics research such as informed consent, issues with privacy and confidentiality, and special issues for diverse groups with a concentration on Native American communities.

Recent Publications

  1. Armsby, AJ, Bombard, Y, Garrison, NA, Halpern-Felsher, BL, Ormond, KE. Attitudes of Members of Genetics Professional Societies Toward Human Gene Editing. CRISPR J 2019; 2 (5): 331-339. PubMed PMID:31599688 .
  2. Kraft, SA, Garrison, NA. An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice. Am J Bioeth 2019; 19 (4): 44-46. PubMed PMID:31544678 .
  3. Kraft, SA, Garrison, NA, Wilfond, BS. Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions. Am J Bioeth 2019; 19 (5): 34-36. PubMed PMID:31090520 .
  4. McGuire, AL, Majumder, MA, Villanueva, AG, Bardill, J, Bollinger, JM, Boerwinkle, E, Bubela, T, Deverka, PA, Evans, BJ, Garrison, NA et al.. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics 2019; 47 (1): 12-20. PubMed PMID:30994067 PubMed Central PMC6738947.
  5. Bombard, Y, Brothers, KB, Fitzgerald-Butt, S, Garrison, NA, Jamal, L, James, CA, Jarvik, GP, McCormick, JB, Nelson, TN, Ormond, KE et al.. The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results. Am. J. Hum. Genet. 2019; 104 (4): 578-595. PubMed PMID:30951675 PubMed Central PMC6451731.
  6. Garrison, NA, Hudson, M, Ballantyne, LL, Garba, I, Martinez, A, Taualii, M, Arbour, L, Caron, NR, Rainie, SC. Genomic Research Through an Indigenous Lens: Understanding the Expectations. Annu Rev Genomics Hum Genet 2019; 20 : 495-517. PubMed PMID:30892943 .
  7. Garrison, NA, Brothers, KB, Goldenberg, AJ, Lynch, JA. Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism. Am J Bioeth 2019; 19 (1): 51-63. PubMed PMID:30676903 PubMed Central PMC6397766.
  8. Antommaria, AHM, Brothers, KB, Myers, JA, Feygin, YB, Aufox, SA, Brilliant, MH, Conway, P, Fullerton, SM, Garrison, NA, Horowitz, CR et al.. Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey. AJOB Empir Bioeth ; 9 (3): 128-142. PubMed PMID:30240342 PubMed Central PMC6354766.
  9. Hester, DM, Lang, KR, Garrison, NA, Diekema, DS. Agreed: The Harm Principle Cannot Replace the Best Interest Standard … but the Best Interest Standard Cannot Replace The Harm Principle Either. Am J Bioeth 2018; 18 (8): 38-40. PubMed PMID:30133400 .
  10. Claw, KG, Anderson, MZ, Begay, RL, Tsosie, KS, Fox, K, Garrison, NA, Summer internship for INdigenous peoples in Genomics (SING) Consortium. A framework for enhancing ethical genomic research with Indigenous communities. Nat Commun 2018; 9 (1): 2957. PubMed PMID:30054469 PubMed Central PMC6063854.
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Dr. Garrison on Twitter

Calling all Navajos! Should the Navajo Nation allow genetic research to take place? We need Navajo peoples' input, pros and cons! Fill out the survey at: bit.ly/navajogenetics. #Navajo #Genetics #Policy

test Twitter Media - Calling all Navajos! Should the Navajo Nation allow genetic research to take place? We need Navajo peoples' input, pros and cons! Fill out the survey at: 
https://t.co/FMeUM8Ly5a. #Navajo #Genetics #Policy https://t.co/SeemtO8vXs

Concerns about the All of Us precision medicine program in their efforts to recruit American Indian / Alaska Native / Native Hawaiian people include lack of proper consultation and engagement with tribal communities. twitter.com/KimTallBear/st…

A group in Australia used genomic analyses to identify links to tribes to repatriate Indigenous ancestors. Elders from multiple tribes were involved in the research study. Interested in seeing next steps in the repatriation process. @SINGConsortium represented! twitter.com/lizzie_wade/st…

A great first start for using genomic analyses to repatriate Indigenous ancestors in Australia. Elders from the community were involved in the research study. Interested in seeing next steps in the repatriation process. twitter.com/carlzimmer/sta…

Check our the live webcast today. Yours truly will be included in this lineup. #GenomicEquity twitter.com/DrCHWilkins/st…

Thanks @edyong209 for raising these issues and showcasing some of the work that Indigenous scholars and allies are doing to ensure ethical research. @SINGConsortium @SilentGenomes twitter.com/kstsosie/statu…

Important efforts in raising the profile of Indigenous peoples and genomics #SilentGenomes twitter.com/silentgenomes/…

An opportunity to work on traditional knowledge and genetics. Please share! twitter.com/aroundhim_d/st…

Watch "Culture: The Silent Language Geneticists Must Learn— Genetic Research with Indigenous Populations" from ASHG 2010 pres Rod McInness. youtube.com/watch?v=2RTPFy… #SilentGenomes #ASHG18

A couple of years old but still relevant and important #SilentGenomes @SINGConsortium twitter.com/sacnas/status/…

@SteveJoffe The panel ended, but the conversation has just begun. Lots more to discuss to ensure ethical, equitable, and engaged research. Follow the discussion via #SilentGenomes and chime in!

The Garrison Lab Website

Curriculum vitae