Symposium Schedule

Precision Medicine for All:  Ensuring Diversity in Participants and in Practice
September 29, 2016
Tinkham Veale University Center, Ballroom A


8:00 – 8:30     Registration and Breakfast


8:30 – 8:40     Welcome and Introduction

Dana Crawford, PhD, Associate Professor
Department of Epidemiology and Biostatistics
Institute for Computational Biology
Case Western Reserve University


8:45 – 9:30     The need for biomedical research in diverse populations

Esteban Burchard, MD, MPH, Professor
School of Pharmacy
University of California San Francisco


9:30 – 10:15     Public attitudes towards the use of genetic research to address health disparities

Aaron Goldenberg, PhD, Associate Professor
Department of Bioethics
Associate Director, Center for Genetic Research Ethics and Law
Case Western Reserve University


10:15 – 10:30     Break (15 min)


10:30 – 11:15     Outreach and experiences in Cleveland participation and retention in research (foodNest)

Darcy Freedman, PhD, Associate Professor
Department of Epidemiology and Biostatistics
Jack, Joseph, and Morton Mandel School for Applied Social Sciences
Core faculty, Prevention Research Center for Health Neighborhoods
Case Western Reserve University


11:15 – Noon     Biorepositories, data collection, and data analysis in US territories

Jacob McCauley, PhD, Associate Professor
Departments of Human Genetics and Pathology
Associate Director, Center for Genome Technology
John P. Hussman Institute for Human Genomics
University of Miami


Noon – 1:30pm     Lunch and poster session

Immunosequencing: Unveiling New Molecular Biomarkers to Guide Precision Medicine

Patrick Raber, PhDAdaptive_Logo_Registered_JPG_5-11-15_hires (1)

Adaptive Biotechnologies



1:30pm – 2:15pm     Genetic ancestry and precision medicine

Timothy Thornton, PhD, Associate Professor
Department of Biostatistics
University of Washington


2:15pm – 3:00pm     Use of electronic health records in Cleveland for diverse precision medicine research enrollment

David Kaelber, MD, PhD
Chief Medical Informatics Officer and Vice-President of Health Informatics
The MetroHealth System


3:00pm-3:15pm     Break


3:15-4:00pm     Pharmacogenomics (and its challenges) in diverse populations

Minoli Perera, PharmD, PhD, Associate Professor
Department of Pharmacology and Center for Pharmacogenomics
Feinberg School of Medicine
Northwestern University


4-4:45pm     Biobanking and research from the participants’ (and their families’) perspectives

The Lacks Family
Veronica Robinson and Shirley Lacks, great-granddaughter and daughter-in-law of Henrietta Lacks.
The invitation of the Lacks family was made possible, in part, by a grant from the Nord Family Foundation through CWRU’s UCITE Nord Grant, the CWRU Cell and Molecular Biology Training Program (T32 GM008056-34), and the CWRU Department of Bioethics.


5pm      Thank you and adjourn



Smith Commons, 1st floor Tinkham Veale University Center